Edit in profile section

My Great Strides Story

Debra Lewendon

Fundraising for Albany Great Strides 2026

Donate

Debra Lewendon

Hello friend.
My youngest grandson, Chase, was diagnosed with CF in 2016 after a newborn screening and further testing.  Our family was devasted not knowing what the future would hold for him, and whether he would even have a future to look forward to. We were told that CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Our family started our Great Strides team, Chase for a Cure and began walking and raising funds towards finding a cure for CF.  While ten years later there is still no cure, there IS hope.  Research and innovation have created medications that has literally breathed new life into people with CF.  Trikafta is a medication that has changed the trajectory of people's lives who are affected by CF and given all of us in the CF community the hope that a cure is not far off.  But, the miracle drug that is Trikafta does not help everyone with CF so we must continue raising funds for research and genetic break throughs so everyone affected can live longer, healthier lives despite their genetics.  Our family strongly believes that a cure will be found during Chase's lifetime, but it will not happen unless we press on in our fundraising.  The CF Foundation takes our fundraising and puts it towards research, innovation, therapies, and care for people with CF.  Please help us in our mission to find and fund a cure. 

There are still too many people with CF that die young and I’m walking to help change that reality. Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

Please help our Chase and others with CF by making a donation, in any amount, towards our Great Strides team and help us to make CF stand for CURE FOUND.
Thank you,
Debbie

 

Comments

$350
raised of $1,000 goal
 

Achievements

Leader

Team Chase for a Cure

$350
$2,500

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.