Will you help Alexandra in her fight against Cystic Fibrosis?
Scott & Wendi Clough
Fundraising for Annapolis Great Strides
Scott & Wendi Clough
June 7 will mark our 22nd year participating in the Great Strides walk for Cystic Fibrosis, in honor of our daughter, Alexandra, who was diagnosed at birth in 2002. Would you consider donating to the CF Foundation and/or joining us at the walk? When Alexandra was born, the median life expectancy was just 33 years. Today, it is 61 years. This incredible progress, almost doubling the median life expectancy, is thanks to those who have donated to the CF Foundation over the years.
A few quick facts showing the progress that has been achieved over the last 20 years (using the latest data from the 2023 CFF Patient Registry Highlights).
From Alexandra;
I am wrapping up my first year of grad school in Savannah, Georgia. Though I had a few upper respiratory infections this past year, overall, I am doing well. While it was a challenge to regulate my diabetes, I started using an insulin pump in November and my A1C is the lowest it has been since I was diagnosed with CF related diabetes in January of 2023. My other medications remain unchanged at about 30 pills a day, and daily chest PT. I am deeply grateful for the medical advances that have allowed me to pursue my dreams.
If you are interested in joining our walk on June 7th, we will be at the Naval Academy Stadium. Registration begins at 10 am and the walk begins at 11 am. Arriving by 10:15 ensures you are there for our team photo. You can register online on our webpage by clicking “Register” at the top of the page. If you would like to make a donation to help reach our goal, you can make a secure online donation by clicking "Donate" at the top of this page. If you prefer, you may also donate by check, made out to the Cystic Fibrosis Foundation, and mail it to Scott Clough, 1200 Cecilia Ct, Annapolis Md 21409.
https://fundraise.cff.org/AnnapolisGS2025/AlexandrasAssembly
Thank you for helping us in our hopes for a cure.
Scott, Wendi, and Alexandra Clough
A few quick facts showing the progress that has been achieved over the last 20 years (using the latest data from the 2023 CFF Patient Registry Highlights).
- Adults living with CF, 2003: 8,518 → 2023: 20,107
- Pregnancies among women with CF, 2003: 162 →2023: 675
- Average Lung function (FEV, Percent Predicted), 2003: 80% → 2023: 94%
- Children using inhaled Antibiotics, 2003: 45%, → 2023: 19%
- Adults using inhaled Antibiotics, 2003: 60%, →2023: 38%
- Lung transplants, in 2003: 142 (by 2018 it had risen to 259), → 2023: 61
- In 2003 there were no CFTR Modulators available (medicines that temporarily help the CFTR protein work), in 2023 92% of the CF population are eligible for CFTR Modulators.
From Alexandra;
I am wrapping up my first year of grad school in Savannah, Georgia. Though I had a few upper respiratory infections this past year, overall, I am doing well. While it was a challenge to regulate my diabetes, I started using an insulin pump in November and my A1C is the lowest it has been since I was diagnosed with CF related diabetes in January of 2023. My other medications remain unchanged at about 30 pills a day, and daily chest PT. I am deeply grateful for the medical advances that have allowed me to pursue my dreams.
If you are interested in joining our walk on June 7th, we will be at the Naval Academy Stadium. Registration begins at 10 am and the walk begins at 11 am. Arriving by 10:15 ensures you are there for our team photo. You can register online on our webpage by clicking “Register” at the top of the page. If you would like to make a donation to help reach our goal, you can make a secure online donation by clicking "Donate" at the top of this page. If you prefer, you may also donate by check, made out to the Cystic Fibrosis Foundation, and mail it to Scott Clough, 1200 Cecilia Ct, Annapolis Md 21409.
https://fundraise.cff.org/AnnapolisGS2025/AlexandrasAssembly
Thank you for helping us in our hopes for a cure.
Scott, Wendi, and Alexandra Clough
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