This is Peter. 

He is the most kind, inquisitive, independent, social butterfly on the planet and he has a rare disease called cystic fibrosis. 

It’s invisible. 

As truly perfect as he is, the cells in his body do not work perfectly. 

His cells are not able to process chloride —causing the mucus in his body to turn to superglue, sticking to and clogging his organs unlike the rest of us whose mucus is like oil in a well oiled machine. 

This sticky mucus that takes up residence in his body makes it a perfect home for bacteria and viruses to grow and wreak havoc. 🦠🦠🦠🦠

Alright, enough about the boring details. It’s been exactly a year since this term “CF” has been a part of our everyday lives.

And guess what? While we were trying to wrap our heads around this diagnosis (still working on that…) BEAUTIFUL life continued as normal. 

Petey is a completely happy and healthy (GRATEFUL) baby who is hitting his milestones with vengeance and enjoying learning about the world.  We all go to sleep and wake up with huge smiles on our faces. We just love being mama and dada to our boy.

So what’s the plan? 

Keep. This. Kid. Healthy. 

It’s no small task. But his team of doctors, family and friends won’t back down from a challenge. 

Avoid CF “red flags” - individuals with respiratory illness symptoms, ponds/puddles, mud/dirt, bath toys, hot tubs, sand boxes, greenhouses, etc.

1 hour of respiratory therapy a day. 365 hours this year 💪

21+ pills 💊 of digestive enzymes a day (in order for the nutrients from his food to be absorbed & to help in weight gain.)

Fun fact: One of my favorite CF traits about Petey is when you kiss him he tastes like a yummy pat of salted butter (I think it’s our dog Skyes favorite part too!)

His future is so bright and we owe all of that to the research and medical advancements that have taken place in the last few years. Let’s make CF stand for cure found.