My Great Strides Story
Don & Barbara Tharnish
Fundraising for Buffalo Great Strides 2026
Don & Barbara Tharnish
Our grandson, Joshua, is 17 years old now and is a junior in high school. He was selected this year as a CF Foundation's junior representative for Teen Advocacy Day for the state of Georgia. This gave him the opportunity to have video calls with Congressmen from the states of Georgia and Florida. He advocated for Medicaid that many people with CF use for healthcare. He is also in 2 research studies with the hope to find better ways to diagnose diabetes for CFers. We are so proud of him putting forth efforts to help others.
He started taking Alyftrek almost a year ago, a new drug made possible by the Cystic Fibrosis Foundation. These drugs are such a gift to the CF community, giving patients dreams of living many years. Alyftrek is taken only once a day, so it reduces the pill burden on CF patients. The CF Foundation continues to fund research to find a cure for Cystic Fibrosis. That's our dream for Joshua!!
There is currently no cure for cystic fibrosis and too many people with CF die young. we're walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
He started taking Alyftrek almost a year ago, a new drug made possible by the Cystic Fibrosis Foundation. These drugs are such a gift to the CF community, giving patients dreams of living many years. Alyftrek is taken only once a day, so it reduces the pill burden on CF patients. The CF Foundation continues to fund research to find a cure for Cystic Fibrosis. That's our dream for Joshua!!
There is currently no cure for cystic fibrosis and too many people with CF die young. we're walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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