Walk with our team to Cure Cystic Fibrosis
Friends Of KC 2026
Fundraising for Buffalo Great Strides 2026
Friends of KC 2026
Hello family and friends!
I hope 2026 is off to a great start for all of you. It has certainly been a long, cold, snowy winter here in Buffalo! We are looking ahead to this year’s Cystic Fibrosis Great Strides walk which will take place at Island Park in Williamsville on Sunday, May 17th. We would love to have you come walk with us and celebrate all the progress that has been made in the last year in the fight against CF!
I just had the chance to spend a day with my dear friend KC. It is both inspiring and a bit exhausting to hear about her work as the Chair of the National CFF Board. In addition to board meetings, KC is travelling constantly to meet with doctors, researchers, CF families, donors and advocates in cities across the US and other countries. KC’s inspiring perseverance and success give so many others in the CF community great optimism for the future; even the fact that she holds this position, the first individual living with CF to do so, is a huge beacon of hope for other CF fighters.
Personally, it was a big transition year for KC and her family as her son Mac started his freshman year in college. To think that, when KC was diagnosed, her parents were daring to dream that she would one day graduate college herself. This year, her son started that chapter of his life! KC continues to work as an assistant professor at UPenn in their Applied Positive Psychology program and stays incredibly busy and active with her husband Justin in Cleveland. IV “tune-ups’, lung function tests, and medication adjustments are a routine part of KC’s life. But she is incredibly grateful for these advances in medicine that help keep her healthy!
In Cystic Fibrosis medical terms, about 90% of CF fighters have gene specific modulator therapies that target the actual defect in the CF gene. It is revolutionary personalized precision medicine at its best! However, for 10% of CF fighters with nonsense or rare mutations, they are still waiting for the breakthrough that KC and other CF’ers have been experiencing. The CF Foundation is committed to “no mutation left behind”- working tirelessly to find a gene specific treatment for all individuals living with CF. So we fight and fundraise and advocate and walk on for now, until CF can stand for Cure Found!
Please consider joining us to walk on Sunday, May 17th in Williamsville! If you aren’t able to walk with us, we would be very grateful for any donation you’d like to make to our Friends of KC team. Thank you for being a part of our efforts each year to fund research, treatments and ultimately find a cure for CF. Thank you for being a part of our greater Friends of KC team!
I hope 2026 is off to a great start for all of you. It has certainly been a long, cold, snowy winter here in Buffalo! We are looking ahead to this year’s Cystic Fibrosis Great Strides walk which will take place at Island Park in Williamsville on Sunday, May 17th. We would love to have you come walk with us and celebrate all the progress that has been made in the last year in the fight against CF!
I just had the chance to spend a day with my dear friend KC. It is both inspiring and a bit exhausting to hear about her work as the Chair of the National CFF Board. In addition to board meetings, KC is travelling constantly to meet with doctors, researchers, CF families, donors and advocates in cities across the US and other countries. KC’s inspiring perseverance and success give so many others in the CF community great optimism for the future; even the fact that she holds this position, the first individual living with CF to do so, is a huge beacon of hope for other CF fighters.
Personally, it was a big transition year for KC and her family as her son Mac started his freshman year in college. To think that, when KC was diagnosed, her parents were daring to dream that she would one day graduate college herself. This year, her son started that chapter of his life! KC continues to work as an assistant professor at UPenn in their Applied Positive Psychology program and stays incredibly busy and active with her husband Justin in Cleveland. IV “tune-ups’, lung function tests, and medication adjustments are a routine part of KC’s life. But she is incredibly grateful for these advances in medicine that help keep her healthy!
In Cystic Fibrosis medical terms, about 90% of CF fighters have gene specific modulator therapies that target the actual defect in the CF gene. It is revolutionary personalized precision medicine at its best! However, for 10% of CF fighters with nonsense or rare mutations, they are still waiting for the breakthrough that KC and other CF’ers have been experiencing. The CF Foundation is committed to “no mutation left behind”- working tirelessly to find a gene specific treatment for all individuals living with CF. So we fight and fundraise and advocate and walk on for now, until CF can stand for Cure Found!
Please consider joining us to walk on Sunday, May 17th in Williamsville! If you aren’t able to walk with us, we would be very grateful for any donation you’d like to make to our Friends of KC team. Thank you for being a part of our efforts each year to fund research, treatments and ultimately find a cure for CF. Thank you for being a part of our greater Friends of KC team!
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