On June 20, 2019 I earned the title of mom. How exciting of a time it is not knowing what you’re doing but also finding the littlest things amazing. All of the ups that a new baby brings can also bring some lows that maybe no one will prepare you for in life.

At Rory’s first pediatrician appointment we learned that Rory’s heel prick came back as positive for Cystic Fibrosis. Our pediatrician told us that there are 80% chance of false positives, but something in my gut told me that it wasn’t a false positive. I remember sitting silently looking at my newborn baby with my husband and just crying in the car. 

We did the second heel prick for the screening and again it came back positive. 

We were then sent to Hopkins for the sweat test. Looking at Rory now, it’s hard to believe there was ever a time he wasn’t a sweaty mess but I think we traveled to Hopkins three times before we got enough sweat collected. As we know, Rory was officially diagnosed with Cystic Fibrosis. 

I remember sitting in our first appointment with Dr. Vanscoy and just crying not knowing what our future held for our newborn. Her words continue to stick with me from that day- “if you were ever to get diagnosed with cystic fibrosis, now is the right time” - she assured us that her and our awesome team at Hopkins would be in our corner and the Cystic Fibrosis foundation will be a great support. She was not wrong. In these quick 5 1/2 years of Rory’s life I have been able to connect with others in this amazing community and also learn more than I could ever imagine about CF.

Cystic Fibrosis is only a small part of Rory. I am excited to see all that Rory will achieve in life with the help of fundraisers like Great Strides and other fundraising events. We hope to work together to make sure that CF  Cure Found. 

Thank you for donating!