Hello Friends and Family!

As is our yearly tradition, we are walking in Great Strides to raise money to find a cure for Cystic Fibrosis for our son Casey and all others who courageously battle this disease.

Casey leads an active, happy life of a 24 year old, but he also spends hours each day to maintain his health through pills, nebulizers, and chest physical therapy.  Casey endures these routines to stay as healthy as possible until more transformative therapies are developed to treat the rare CF mutations that he has that do not respond the the current modulator drugs that have changed the lives of so many CF patients.

These modulators are combination therapy oral medications that treat the underlying cause of CF for more than 90% of patients. They are tremendously successful and life changing. When Casey was born in 2001, the average life expectancy of a CF patient was in their 20s. Today, the median life expectancy is well over 60, with some patients living well into their 70s and beyond. More CF patients are able to have babies, build families, and live full lives. This is a direct result of support of the Cystic Fibrosis Foundation that funds critical research, and accompanying clinical trials and medication developments. 

However, nearly 10% of the CF population, including Casey, whose CF mutations deem them ineligible, do not qualify for this transformational treatment. For this reason, and many more, we continue our fight for a cure.  

The Cystic Fibrosis Foundation is dedicated to funding this cure for all who suffer from this disease. Their motto is "until it's done".  Research and clinical trials are advancing not only to develop medications to treat CF symptoms but also for a true cure, an end to CF, for all patients.  Both of these goals are within reach, likely by way of genetic treatments. 

Casey's Batters is helping fund the science that assists the development of these treatments and give Casey more time to live his life to the fullest.
  

Please consider making a donation to the Cystic Fibrosis Foundation to help Casey and all the others afflicted with this horrible disease. With your help we can make CF stand for CURE FOUND!

If you prefer, you can mail a check made out to the Cystic Fibrosis Foundation to us at 5805 Searl Terrace, Bethesda, MD 20816.

We are also walking in DC on May 31, visit https://fundraise.cff.org/DC2025/JenniferOLeary?tab=MyPage to join us!


With so much gratitude,
Dennis and Jennifer