Hello Friends and Family!

As is our yearly tradition, we are walking in Great Strides to raise money to find a cure for Cystic Fibrosis for our son Casey and all others who courageously battle this disease.

While Casey leads a relatively normal life of a 24 year old, he also spends hours each day to maintain his health through pills, nebulizers, and chest physical therapy.  Casey endures these routines to stay as healthy as possible until more transformative therapies are developed to treat the rare CF mutations that he has that do not respond the the current "miracle drugs" that have changed the lives of so many CF patients.

As you may know, Trikafta, a triple combination therapy that treats the underlying cause of CF for more than 90% of patients, has had tremendous success over the past few years. When Casey was born in 2001, the average life expectancy of a CF patient was in their 20s. Today, the median life expectancy is well over 60, with some patients living well into their 70s and beyond. More CF patients are able to have babies, build families, and live full lives. This is a direct result of support of the Cystic Fibrosis Foundation that funds critical research, and accompanying clinical trials and medication developments. 

However, nearly 10% of the CF population, including Casey, whose CF mutations deem them ineligible, do not qualify for this transformational treatment. For this reason, and many more, we continue our fight for a cure.  

The Cystic Fibrosis Foundation is dedicated to funding this cure for all who suffer from this disease. Their motto is "until it's done".  Research and clinical trials are currently underway not only to develop medications to treat CF symptoms but also for a true cure, an end to CF, for all patients.  Both of these goals are within reach, likely by way of genetic treatments. 

These promising genetic therapies - the cure - are far more costly to develop and bring to market than traditional medications. This is where we need your help.

Please consider making a donation to the Cystic Fibrosis Foundation to help Casey and all the others afflicted with this horrible disease. With your help we can make CF stand for CURE FOUND!

If you prefer, you can mail a check made out to the Cystic Fibrosis Foundation to us at 5805 Searl Terrace, Bethesda, MD 20816.

With so much gratitude,
Dennis and Jennifer