Lise Howe
This is a photo of my daughter, Lise Courtney, on her wedding day. She was diagnosed with cystic fibrosis when she was two, when life expectancy was in the late 20s to early 30s for someone with CF. We were devastated and fearful of what the future might hold for our lovely little girl. Lise Courtney has the most common genetic variation, which has turned out to be fortunate since she is able to benefit from new medications whose creation were supported by the Cystic Fibrosis Foundation. These medications have improved her health considerably. However, many people with CF have genetic variants that do not respond to the new treatments and research must continue to help everyone with CF. There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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