Whitney Klepadlo
My son Joseph was diagnosed with Cystic Fibrosis at just 6 weeks old; after countless ER visits, blood draws, tests we finally had a name for what we needed to fight for. When Joseph was 2 years old, he was first hospitalized for IV antibiotics for a cold that turned into a lung exacerbation that just wouldn't go away. All parents have a strong dislike of cold & flu season - CF parents harbor a deep paralyzing fear during cold & flu season. Over the course of this very year he was on antibiotics over 6 times and had a cough that would keep him up, keep us up almost every night.
In May 2023 at 3.5 years old he started Trikafta, a modulator his particular genetic mutation would potentially respond to. A miracle drug for Joseph. He has not been on antibiotics since starting Trikafta and is a thriving, hot wheels loving 5 year old who lives to go see his friends at school and play sports outside with his Dad and two younger brothers.
As his mother, I can't put into words what this drug has changed for us. I no longer live with a visceral fear, such a level of anxiety that every trip to playground my concerns over what germs he picked up would keep me up at night. I don't flinch at every cough or sniffle. Trikafta has given us a level of hope and security that would not exist today if it weren't for the CFF - for all of you who donate to help us achieve the next great milestone in care for CF patients.
This is far from the end. There are still many patients out there who are not eligible for any of the current modulators. There still is no cure. We have made GREAT STRIDES but this is not the end of the race. The Klepadlos will continue raising funding for research, for clinical trials, for major medical advancements until every CF patient has a modulator - until CF stand for CURE FOUND.
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CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
In May 2023 at 3.5 years old he started Trikafta, a modulator his particular genetic mutation would potentially respond to. A miracle drug for Joseph. He has not been on antibiotics since starting Trikafta and is a thriving, hot wheels loving 5 year old who lives to go see his friends at school and play sports outside with his Dad and two younger brothers.
As his mother, I can't put into words what this drug has changed for us. I no longer live with a visceral fear, such a level of anxiety that every trip to playground my concerns over what germs he picked up would keep me up at night. I don't flinch at every cough or sniffle. Trikafta has given us a level of hope and security that would not exist today if it weren't for the CFF - for all of you who donate to help us achieve the next great milestone in care for CF patients.
This is far from the end. There are still many patients out there who are not eligible for any of the current modulators. There still is no cure. We have made GREAT STRIDES but this is not the end of the race. The Klepadlos will continue raising funding for research, for clinical trials, for major medical advancements until every CF patient has a modulator - until CF stand for CURE FOUND.
--
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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