๐Ÿ’™Join us in memory of Brian C. Long๐Ÿ’™

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BLongStrong

We are excited to announce that Team #BLongStrong will be walking in the Cystic Fibrosis Great Strides Walk that will take place on May 18, 2025, in South Boston, MA at Carson Beach. This event holds a special place in our hearts as we come together to honor the memory of Brian C. Long, who courageously battled cystic fibrosis for 51 years before his passing in June 2023.
 

Event Details:

  • Date: May 18, 2025
  • Check-In Time: 10:00 AM
  • Walk Start Time: 11:00 AM
  • Distance: 3 miles
  • Location: Carson Beach, South Boston, MA


Brian's life was a testament to courage, resilience, and compassion. From a young age, his charming personality and unwavering determination made him a recognizable figure in the fight against cystic fibrosis. He dedicated himself to raising awareness and funds for the Cystic Fibrosis Foundation - Massachusetts/Rhode Island Chapter, helping to raise millions of dollars to combat this genetic disease that affects the lungs and digestive systems.


Brian and his family played a pivotal role in launching the inaugural Walk to Cure Cystic Fibrosis, collaborating with the Massachusetts State Police to organize annual charity walks from Boston City Hall Plaza to Boston Children's Hospital and Massachusetts General Hospital. These walks laid the foundation for larger fundraisers, including the nationally recognized Great Strides to Cure CF, which raises millions annually for the CF Foundation. Brian's involvement went beyond advocacy; he was an ambassador for those fighting cystic fibrosis. His infectious smile and natural charisma made him a trusted leader, uniting a broad network of family, friends, and volunteers in the cause. His boundless generosity and compassion touched the lives of many.


Despite the challenges posed by his illness, Brian lived life to the fullest. In 2008, he underwent a double lung transplant, which gave him a new lease on life. He embraced this second chance with gusto, enjoying travel, yachting, and cherishing moments with his loved ones. He showed us all that even in the darkest of times, there is always room for laughter, love, and coming together.


As we gather for the Great Strides Walk on May 18th, we invite you to join Team #BLongStrong in honoring Brian's memory. Whether you walk alongside us or make a donation, your contribution will make a difference in the lives of those affected by cystic fibrosis. Together, we can continue Brian's legacy of hope and resilience.


How You Can Get Involved:

  • Join the Team: Walk with us on May 18th to honor Brian's memory.
  • Donate: Support our fundraising efforts to help find a cure for cystic fibrosis.
  • Volunteer: Assist with event-day activities to ensure a successful walk.


Link to Donate, Join the Team, or Volunteer: https://fundraise.cff.org/BostonGS2025


Thank you for your support and for keeping Brian's memory alive. Together, we can make a difference. ๐Ÿ’™๐Ÿ’›

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.