Holly Kemp
Hi Everyone,
Our annual Cystic Fibrosis Great Strides 2025 walk is on the calendar for Sunday, May 18!
As you know, my close friend KC White was diagnosed with Cystic Fibrosis at age 3 1/2 and turned 46 years old a few weeks ago! KC lives in Cleveland with her husband Justin and 18 year old son Mac. KC has been busy; coaching high school lacrosse and of course continuing her amazing leadership as Chair of the National Cystic Fibrosis Foundation Board. This responsibility puts her on the front lines of leading the foundation through a crucial time in their history. In addition to board meetings, KC travels all over the world to meet with doctors, researchers, CF families, donors and advocates in cities across the US and other countries. KC’s inspiring perseverance and success give so many others in the CF community great optimism for the future.
As I mentioned in last year's email, for over a year between May 2023 and June 2024, KC was on 12 different antibiotics for a lung infection. It was a challenging and stressful stretch for KC and her family. Since last June, however, KC hasn’t been on any antibiotics!
The Foundation's motto is 'no mutation left behind'. Even the most prominent breakthrough drugs don't help all people living with Cystic Fibrosis. Now, more than ever, funds are needed to further research for a cure.
I continue to be a member of the WNY CFF Board of Directors and volunteer at most of the chapter events! The foundation has announced the median age of those with CF is now over 50 years old! This is groundbreaking. We all truly believe CF will one day stand for Cure Found.
There are 3 ways you can get involved:
1) Donate online (new website this year)
https://fundraise.cff.org/Buffalo2025/Member/MyPage/7724629/Holly-Kemp
2) Mail me a check made out to the Cystic Fibrosis Foundation
69 Grayton Rd, Tonawanda, NY 14150
3) Walk with me on 5/18 in Williamsville, NY by joining my Friends of KC team
https://fundraise.cff.org/Buffalo2025
Any donation is always appreciated by both KC and myself!
Thank you in advance for your support! Your donations truly make a difference.
Until It's Done. Love, Holly
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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