In 1991, our daughter Jamie was born with Cystic Fibrosis.  Everything we read presented a bleak future for our baby girl.  We decided that we would do everything possible to try and provide a close to normal, full, and fun life for our daughter.

We got involved with the Cystic Fibrosis Foundation and started fundraising.  Two years later Jenna and Jackie were born.  Raising money for CF research soon became a family event.  Our families, our work communities, the girls' school staff and students also joined our fight.  

Throughout the years we've seen some incredible drugs become available, but in 2015, at the age of 23, when Jamie was at her absolute worst, she was able to start orkambi.  This was a game changer! Her health became markedly improved.  And with continued research, provided through fundraising, the medicines kept improving.  She is currently taking trikafta.  This is a true miracle drug.  Instead of spending 2-3 weeks in the hospital every two months, she is thriving!  Jamie has an amazing son, Lucas and she has recently graduated from nursing school.  

Luckily for us, Jamie has been able to live a full, fairly healthy life since 2015 because of current research and medicines. Unfortunately, trikafta doesn’t work on everyone who has CF.  Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.