Mighty Mabel
This is our sweet Mighty Mabel! Since being diagnosed with cystic fibrosis at birth, she has been nothing short of resilient. Our daily routine is different than most kids of her age but that doesn’t stop her. She loves singing, painting, dancing, gymnastics, and designing rooms on her Nintendo Switch. Over the years there have been significant advancements in the treatment of CF; while we are thrilled to see the progress, the help for Mabel is still far away.
Mabel was born with two rare mutations, and unfortunately she is not a candidate for the new treatments available today. The fight ramped up this past year as she continued to fall short of her weight goals; therefore, extra steps had to be taken to help, including a feeding tube. We are so happy to report that it is helping! It has been a huge step for us as a family; we’ve had to learn, trust, breathe, hug, cry, and look through the dark toward the light of progress. Still, the fight continues. We want to sincerely thank those that have supported Mabel along the way, and the generous donations over the years as the fight goes on. Please consider joining our team or donating to help make CF stand for CURE FOUND!
With Love,
Bob and Krista
Living with cystic fibrosis (CF) is an ongoing struggle that affects the lungs and digestive system, leading to severe respiratory and digestive issues. Daily life involves time-consuming treatments like chest physiotherapy, inhaled medications, and enzyme supplements. These are essential but can be exhausting.
The psychological impact is also significant, with frequent medical care and hospital visits leading to feelings of isolation and anxiety. Despite these challenges, individuals with CF often show remarkable resilience. They manage their condition with a positive outlook, supported by family, friends, and fellow patients.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Mabel was born with two rare mutations, and unfortunately she is not a candidate for the new treatments available today. The fight ramped up this past year as she continued to fall short of her weight goals; therefore, extra steps had to be taken to help, including a feeding tube. We are so happy to report that it is helping! It has been a huge step for us as a family; we’ve had to learn, trust, breathe, hug, cry, and look through the dark toward the light of progress. Still, the fight continues. We want to sincerely thank those that have supported Mabel along the way, and the generous donations over the years as the fight goes on. Please consider joining our team or donating to help make CF stand for CURE FOUND!
With Love,
Bob and Krista
Living with cystic fibrosis (CF) is an ongoing struggle that affects the lungs and digestive system, leading to severe respiratory and digestive issues. Daily life involves time-consuming treatments like chest physiotherapy, inhaled medications, and enzyme supplements. These are essential but can be exhausting.
The psychological impact is also significant, with frequent medical care and hospital visits leading to feelings of isolation and anxiety. Despite these challenges, individuals with CF often show remarkable resilience. They manage their condition with a positive outlook, supported by family, friends, and fellow patients.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
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