My Great Strides Story
Ulrike Carlino-Macdonald
Fundraising for Buffalo Great Strides
Ulrike Carlino-MacDonald
My son, Ethan was born with Cystic Fibrosis 22 years ago. The illness required several daily medications and physical therapy. During his teenage years hospitalizations became more frequent and the prospect of going away to College dwindled.
Then came Trikafta and his life changed on Thanksgiving Day 2019!! This modulator medication, developed and brought to market with help from the Cystic Fibrosis Foundation had given Ethan a new life. Now he WAS able to go away to College and will be graduating this May!!
I am deeply grateful to the Cystic Fibrosis Foundation and I wanted to raise funds to support continuing research into medications for all those CF patients who do not yet have effective medicines for their illness.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Then came Trikafta and his life changed on Thanksgiving Day 2019!! This modulator medication, developed and brought to market with help from the Cystic Fibrosis Foundation had given Ethan a new life. Now he WAS able to go away to College and will be graduating this May!!
I am deeply grateful to the Cystic Fibrosis Foundation and I wanted to raise funds to support continuing research into medications for all those CF patients who do not yet have effective medicines for their illness.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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