Kelly Mordaunt
Every May, when the flowers pop up again and I am reminded to stay hopeful, I reach out to you on behalf of our team Fer Jules to humbly ask if you would like to join our cause. And every May you come through like the sunlight!
Did you know that Team Fer Jules was honored this year as the 2024 Top Walk team for the Buffalo chapter?!
Did you know that Team Fer Jules was honored this year as the 2024 Top Walk team for the Buffalo chapter?!
On a profoundly personal level, it's hard to put into words just how much your support means to me and my family. But let me put that aside for a moment and show you the factual impact your dollar had in 2024.
It was another incredible year for progress. Here are just some of the biggest news headlines we saw:
CF Foundation Invests Up to $2.3 Million to Develop Test for Lung InfectionsThe Foundation’s funding will support Owlstone Medical’s development of a breath test to help doctors diagnose and monitor Pseudomonas aeruginosa infections in people with cystic fibrosis.
FDA Approves New, Once-a-Day CFTR Modulator for People With CF
A new CFTR modulator treatment called Alyftrek has been approved for people with CF ages 6 and older who have CFTR mutations that are eligible for Trikafta, as well as 31 other rare mutations that have not been approved previously for any other CFTR modulator.
CF Foundation Invests Up to $15 million to Develop a Gene Editing Therapy
The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells in people with cystic fibrosis.
Cystic Fibrosis Foundation Funds Up to $15 Million to Pursue Gene Editing in CF
Prime Medicine’s prime editing technology has the potential to bring genetic therapies to all people with cystic fibrosis, ultimately paving the way to a cure.
CF Foundation Invests up to $5M to Develop a New Anti-Bacterial Therapy
Clarametyx’s novel therapy aims to disrupt bacterial biofilms, one of the primary causes of antibiotic resistance, increasing the effectiveness in fighting a wide range of bacterial infections commonly affecting people with CF.
CF Foundation Invests Up to $9 Million to Develop a Messenger RNA Therapy
The Cystic Fibrosis Foundation is providing additional funding to Arcturus Therapeutics to develop an inhaled messenger RNA therapy for CF that provides lung cells with the correct instructions to make functional cystic fibrosis transmembrane conductance regulator protein.
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Perhaps most importantly, the Cystic Fibrosis Foundation continues to be advocates for patients and their families by continually showing up and representing us:
CF Foundation Responds to Mass Reductions in Force Across the FDA and NIH
"The Cystic Fibrosis Foundation opposes the sudden and sweeping reductions-in-force (RIFs) across key federal scientific agencies, particularly the U.S. Food and Drug Administration (FDA) and the National Institutes of Health (NIH). These organizations and the experts they employ play a critical role in advancing the development of safe and effective therapies that individuals with CF need to manage their disease, and in fostering the innovation needed to find a cure for all people with cystic fibrosis.
The incredible progress in cystic fibrosis treatment and care is possible because of the support and scientific expertise provided by the FDA and NIH. While it is reasonable to ensure that these agencies are operating effectively and efficiently, enacting such abrupt and sweeping cuts to the workforce will hinder critical scientific advancements and delay patient access to safe and effective transformative therapies in the future."
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It is truly remarkable how close we are to finding a cure – which could not be done without you. I want to stress that again. YOU are a part of this! You are making this happen for Julia.
When she was born in 1981, people with Cystic Fibrosis had a life expectancy of 18 years old. We've lost too many young and precious lives to this disease, and we continue to lose them.
Sometimes I catch myself saying things like, “my sister is one of the lucky ones” – but luck really has nothing to do with it – it’s science. It's research. It's your donation to the Cystic Fibrosis Foundation.
Can I count on you again to join me? To be a part of what 2025 will bring? Can you imagine if it's a CURE? I can.
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