My Great Strides Story
Renee Place
Fundraising for Burlington Vermont Great Strides
Renee Place
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Two of our three sons, Nick and Keegan were diagnosed with CF at ages 8 and 6. They have endured countless hours of daily treatments, hospital stays, doctor’s appointments, and navigating the very difficult health insurance landscape! They are now 26 and 24 and are doing very well in large part due to breakthrough drugs like Trikafta. These therapies are only made possible by venture funding from the CF Foundation. Without seed and research funding many companies would not take on the cause. While Nick and Keegan are doing well currently, there is still no cure and there are many other CF patients not benefiting from this particular treatment.
So we need to continue the fight to find a cure for all living with this terrible disease!
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Two of our three sons, Nick and Keegan were diagnosed with CF at ages 8 and 6. They have endured countless hours of daily treatments, hospital stays, doctor’s appointments, and navigating the very difficult health insurance landscape! They are now 26 and 24 and are doing very well in large part due to breakthrough drugs like Trikafta. These therapies are only made possible by venture funding from the CF Foundation. Without seed and research funding many companies would not take on the cause. While Nick and Keegan are doing well currently, there is still no cure and there are many other CF patients not benefiting from this particular treatment.
So we need to continue the fight to find a cure for all living with this terrible disease!
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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