My Great Strides Story
Sidney Bewlay
Fundraising for Burlington Vermont Great Strides 2026
Sidney Bewlay
As someone who has CF, I’m lucky to say that today, I am the healthiest I have ever been and that would not be possible without the work of the CF Foundation.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Those who have known me since childhood know, I have had numerous operations related to complications from CF and would typically have two or three hospitalizations in a given year — all for central IV lines to provide antibiotics to fight off serious lung infections.
Today, I’m thrilled to say that I have not been hospitalized since 2019, largely due to the invention of Trikafta, a medication that treats the underlying causes of CF.
However, is currently no cure for cystic fibrosis and patients can’t take Trikafta, the medication that has drastically changed my quality of life.
Even with groundbreaking medical improvements and research in recent years, too many people with CF die young. I’m walking to help change that reality.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Those who have known me since childhood know, I have had numerous operations related to complications from CF and would typically have two or three hospitalizations in a given year — all for central IV lines to provide antibiotics to fight off serious lung infections.
Today, I’m thrilled to say that I have not been hospitalized since 2019, largely due to the invention of Trikafta, a medication that treats the underlying causes of CF.
However, is currently no cure for cystic fibrosis and patients can’t take Trikafta, the medication that has drastically changed my quality of life.
Even with groundbreaking medical improvements and research in recent years, too many people with CF die young. I’m walking to help change that reality.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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