Walk with our team to Cure Cystic Fibrosis
MAYBEL's MAGIC
MAYBEL'S MAGIC
Maybel is our almost 4-year-old daughter who was unexpectedly diagnosed with Cystic Fibrosis at birth. Because of her, we fundraise. CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. While there have been huge medical advancements and life expectancy has improved, there is still no cure. She has a daily routine filled with medications and therapies to manage her CF and regular appointments with her CF team. Maybel has to do vest treatment 2 times a day for 25 minutes while doing nebulizer treatment. She has to do it 4 times a day for 25 minutes when she is sick. This vest shakes her and helps break up and loosen the thick mucus. It is a very rigid routine in order to help slow the progression and keep her healthy.
This is our third CF walk and because of all of your support these 3 years, new treatments have been developed in improving our daughter's health. While we are grateful that these medications have been developed, not everyone has access to these drugs, it isn't a cure, and it doesn't mean she won't experience infections or possibly inpatient hospital stays. We need a cure and that's where all of you come in. Please consider helping us reach our goal another year so that one day our daughter and others can experience life free of this illness.
To our ongoing supporters, your unwavering support doesn't go unnoticed. From the bottom of our hearts, thank you. We cannot do this without you.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. While there have been huge medical advancements and life expectancy has improved, there is still no cure. She has a daily routine filled with medications and therapies to manage her CF and regular appointments with her CF team. Maybel has to do vest treatment 2 times a day for 25 minutes while doing nebulizer treatment. She has to do it 4 times a day for 25 minutes when she is sick. This vest shakes her and helps break up and loosen the thick mucus. It is a very rigid routine in order to help slow the progression and keep her healthy.
This is our third CF walk and because of all of your support these 3 years, new treatments have been developed in improving our daughter's health. While we are grateful that these medications have been developed, not everyone has access to these drugs, it isn't a cure, and it doesn't mean she won't experience infections or possibly inpatient hospital stays. We need a cure and that's where all of you come in. Please consider helping us reach our goal another year so that one day our daughter and others can experience life free of this illness.
To our ongoing supporters, your unwavering support doesn't go unnoticed. From the bottom of our hearts, thank you. We cannot do this without you.
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