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My Great Strides Story

Daelee Shaheen

Fundraising for Central Oregon Great Strides

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Daelee Shaheen

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

Hi, Daelee here!! Both Austin and I are asking everyone to join our team to not only raise awareness but also raise money for Cystic Fibrosis. Austin and I both have Cystic Fibrosis and had a Double Lung Transplant in 2018. We are 7.5 years post transplant. I am doing well but because of covid-19 we both caught a year and a half ago Austin lost almost all his lung function and never gained it back. He is now doing a lot of testing to get listed for a SECOND DOUBLE LUNG TRANSPLANT. Our Lungs are now apart of the Transplant team and has come with a lot of other health issues but Cystic Fibrosis is still in the rest of our body and effects all our other organs.
Our favorite thing to do is anything involving our 3 dogs and family. We are getting married June 13th of this year! We have so much to look forward to! Please come walk with us!

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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raised of $150 goal
 

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.