Avi's Great Strides Story
Sandy Kaye
Fundraising for Charlottesville Great Strides
Sandy Kaye
It is hard to believe that Avi will be finishing 1st grade soon! He is as creative, loving, and impassioned as ever. This year, Avi's fascination is with sea life, inspired by "The Octonauts." His cardboard replicas of the various vehicles used by the octonauts now fill our sunroom and basement! He has also assigned an octonaut character to each family member and several close friends. Avi frequently walks around with a backpack full of medical equipment, as he is Peso, the octonaut medic. We are immensely grateful that Avi's health has remained strong this year. He is diligent with his medications and respiratory therapies and has done well without his g-tube since it was removed last April. Much of this great news is a direct result of the incredible dedication and relentless work of the CF Foundation, and we are deeply grateful.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
With Love and Appreciation,
Sandy
Jenny and Matt
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
With Love and Appreciation,
Sandy
Jenny and Matt
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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