No parent ever wants to receive the news that their child has an incurable disease. At just a few days shy of two weeks old, Bastian was diagnosed with Cystic Fibrosis. Adequate weight gain has always been a struggle for Bastian. At just two weeks old, he was started on enzymes that he has to take in apple sauce every single time he eats. He’s also on a formula for failure to thrive babies and has to have butter added to all of his foods. In September, he cultured pseudomonas for the first time. This is an infection in his lungs that’s very hard to eradicate. He’s done three rounds of antibiotics so far and is unfortunately still culturing it. Bastian is currently on seven medications and does almost two hours of breathing treatments and chest therapy a day. Despite all of this, Bas is still the happiest baby, always willing to offer up a smile.

Cystic Fibrosis looks different for everyone, but something that remains the same is that there is no cure. This disease has come a long ways from what it once was thanks to preventative treatments and new medications, but it’s still taking lives and will continue to do so until there’s a cure.

On May 3rd, in Charlottesville, the Cystic Fibrosis Foundation is hosting their annual Great Strides event. It’s a walk-a-thon to raise money for research, clinical trials, and new drug development. Every cent raised gets them closer and closer to finding a cure. We’d love to have you join Bastian’s Brigade and walk with us to bring awareness to Cystic Fibrosis and those who battle this disease every day. You can find the information for how to donate or join our team pinned to the top of the page. Even if you just share Bastian’s Brigade to spread awareness and get the word out, that’d be incredible! We appreciate all of your support more than you could ever know💕