My Great Strides Story
Elizabeth Nowicki
Elizabeth Nowicki
Many of you know that Robbie has Cystic Fibrosis, a disease with no cure.
Robbie is an amazing 15 year old - both funny and smart. He is doing well in his sophmore year of high school, playing tennis and gaming with friends. He is a total foodie - always willing to try new things, but does rely on his love of sushi.
To maintain his health Robbie must continue with 2x day nebulizer treatments, take multiple medications daily, see speacialists and doctors bi-monthly, do quarterly blood draws and have annual test like CAT scans. In the past 15 years I have seen your donations make a difference. About two years ago Robbie started taking a new drug - Trikafta - that has reduced the frequency of exacerbations. So thank you...
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Robbie is an amazing 15 year old - both funny and smart. He is doing well in his sophmore year of high school, playing tennis and gaming with friends. He is a total foodie - always willing to try new things, but does rely on his love of sushi.
To maintain his health Robbie must continue with 2x day nebulizer treatments, take multiple medications daily, see speacialists and doctors bi-monthly, do quarterly blood draws and have annual test like CAT scans. In the past 15 years I have seen your donations make a difference. About two years ago Robbie started taking a new drug - Trikafta - that has reduced the frequency of exacerbations. So thank you...
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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