Join Team Nolan Patrol is On a Roll for Cystic Fibrosis!

We invite you to be a part of something special by joining our team, Nolan Patrol: On a Roll, for the Great Strides Walk. This is a fun, inspiring event where we walk together to advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll be part of a community working to make an incredible impact – and we promise, you belong here!

While the Cystic Fibrosis Foundation has made amazing progress, the work is far from over. There’s still no cure for CF, and to find one, we need continued funding, time, and effort. But with you on our team, we’re ready to go the distance together!

Our mission is to provide every person with cystic fibrosis the opportunity to live a long, healthy life – and we’d love for you to join us in making that a reality.
 

A Personal Story from Our Family:

Our son, Nolan, was diagnosed with cystic fibrosis at birth through the heel prick test. The news was a shock, but after meeting with Nolan’s incredible care team at University Hospitals, we decided to put our trust in them – and in the future of CF research by the Cystic Fibrosis Foundation.

We quickly realized that, while we could rely on doctors and nurses, we needed to do more. That’s when we found Great Strides. This will be our 4th walk, and Nolan will be turning 3 years old! The time has flown by, and so much has changed.

Nolan’s first year was incredibly challenging for all of us. He struggled to gain weight, had trouble eating, and it was difficult to get him to take the medication he needed to help him digest food. As parents, we constantly worried about germs, bacteria, and how they could affect Nolan's fragile immune system.

But today, Nolan is thriving! He’s a true rockstar. Although he still struggles with weight gain, he knows that eating well makes him strong. He’s a pro at doing his daily therapies – from his Vest Therapy to his nebulizer treatments, and he never hesitates to take his enzymes and Trikafta, which help manage CF’s symptoms. He even takes up to 24 pills a day, plus vitamins, without a second thought. This 3-year-old is truly a WARRIOR.

As much as I’m proud of Nolan, I don’t want him to have to go through this every day. I don’t want him to face the harsh realities of CF. The truth is, every CF journey is different, but they all come with the same challenges: daily treatments, medications, and a constant awareness of germs and bacteria.

That’s why we’re fundraising. Our goal is to help make everyone’s journey easier – through new therapies, treatments, and ultimately, a cure. We won’t stop until there is a cure for everyone living with cystic fibrosis.

We need your help to keep fighting, and we hope you’ll walk with us. Together, we can make a difference!

Thank you for supporting our mission, and for walking alongside us.

Love,

The Hess Family 
Jason, Jackie, Gavin and our warrior, Nolan