My Great Strides Story
Mylee Bosi
Fundraising for Cleveland Great Strides 2026
Mylee Bosi
Hi Fam! It’s been a while since I gave a health update, so this will be a bit of a longer one. I know many of you pray for me regularly and I am so grateful for that. The support and love that I know I have behind me is such an encouragement. ❤️
It has been 15 months since I was placed on the transplant list. In November I had two dry runs, which is when they have a match for me for lungs and Cedric and I go to the hospital and get prepped for transplant, but the lungs end up not working out for me for various reasons. Those were exciting because it felt like something was finally happening after months of not hearing anything… but they were also so incredibly hard and disappointing. It is hard not to get your hopes up when you get that call. Such a roller coaster of emotions.
Well… we got another call two Saturdays ago, March 28th. They called me at 5PM and said they had lungs for me and that I needed to be at the clinic by 9PM. Cedric and I packed our go bags and headed out. They ran tests on me to make sure that I was infection free and in good shape for a transplant. They told me the donor would go into the OR at midnight and we’d know by early morning if things would be a go.
We waited there in the ICU. Around 2AM they told us that the preliminary exam of the lungs looked good and that they should arrive at the hospital around 7:30 AM.
At 7 AM, the surgeon came to our room and talked with me about where they would be making the incisions to take out my lungs. We’ve never gotten that far to talk to the surgeon. It felt so surreal. He talked with us for about 30 minutes, had me sign papers, and said that the lungs would arrive around 8 AM and that they would take a look at them, which could take just a few minutes or a few hours depending on what they found.
I really tried hard not to get too excited, but it felt so, so close. 🤍
My phone rang at 8:15 AM. I could tell by the transplant coordinator’s tone that this was a dry run before she even said the words. I kept it together until I hung up the phone. It was a short call. Not much to say really. They don’t tell you much about the donor or the situation, but they did tell me that the lungs were “marginal,” which meant that they were almost good enough — but the surgeons didn’t want to give me lungs that were almost good enough due to my age. They want to make sure that I get lungs that last me for decades.
I appreciate their concern, but man — that was devastating. This felt like the time. 💔
There is a silver lining, because at least we saw that things are happening. Sometimes the months of waiting without hearing anything are so hard. I don’t know which is harder.
This has all taken a toll on me. I’ve felt devastated, exhausted, mad, frustrated… and I’ve been battling with God.
But I’ll cling to these words that my mama repeated all the time. I know that… God is good. God is good to me. and God is good at being God. I know that, but man, this disease tries to discourage that truth out of you. ✨
This Monday I came in for a scheduled maintenance stay. The first few days I always feel so crummy, and that held true, but I am grateful that this time there were no fevers, crazy high heart rates, or rashes. Today I am turning the corner and starting to feel better. 🙏
So that’s where I am right now. People often ask if they can do anything for me when I’m in the hospital, and it’s that time of year when I kick off my fundraising for the Cystic Fibrosis Foundation. My battle with Cystic Fibrosis will take a dramatic turn when I get the transplant, but you guys — we have got to find a cure for this awful disease so that those with CF right now don’t have to get to the point where they need a double lung transplant.
Help me raise funds to find a cure for all of them by making a donation at myleebosi.com.
I’m grateful for the prayers and encouragement, and for all of you who are supporting Cedric and me and my whole family. I have a lot to be grateful for. Thanks for being part of that and thank you for reading my health update novel! More short updates to come, including bragging on the amazing care and selfless love that my cute hubby shows me every day! 🤍
It has been 15 months since I was placed on the transplant list. In November I had two dry runs, which is when they have a match for me for lungs and Cedric and I go to the hospital and get prepped for transplant, but the lungs end up not working out for me for various reasons. Those were exciting because it felt like something was finally happening after months of not hearing anything… but they were also so incredibly hard and disappointing. It is hard not to get your hopes up when you get that call. Such a roller coaster of emotions.
Well… we got another call two Saturdays ago, March 28th. They called me at 5PM and said they had lungs for me and that I needed to be at the clinic by 9PM. Cedric and I packed our go bags and headed out. They ran tests on me to make sure that I was infection free and in good shape for a transplant. They told me the donor would go into the OR at midnight and we’d know by early morning if things would be a go.
We waited there in the ICU. Around 2AM they told us that the preliminary exam of the lungs looked good and that they should arrive at the hospital around 7:30 AM.
At 7 AM, the surgeon came to our room and talked with me about where they would be making the incisions to take out my lungs. We’ve never gotten that far to talk to the surgeon. It felt so surreal. He talked with us for about 30 minutes, had me sign papers, and said that the lungs would arrive around 8 AM and that they would take a look at them, which could take just a few minutes or a few hours depending on what they found.
I really tried hard not to get too excited, but it felt so, so close. 🤍
My phone rang at 8:15 AM. I could tell by the transplant coordinator’s tone that this was a dry run before she even said the words. I kept it together until I hung up the phone. It was a short call. Not much to say really. They don’t tell you much about the donor or the situation, but they did tell me that the lungs were “marginal,” which meant that they were almost good enough — but the surgeons didn’t want to give me lungs that were almost good enough due to my age. They want to make sure that I get lungs that last me for decades.
I appreciate their concern, but man — that was devastating. This felt like the time. 💔
There is a silver lining, because at least we saw that things are happening. Sometimes the months of waiting without hearing anything are so hard. I don’t know which is harder.
This has all taken a toll on me. I’ve felt devastated, exhausted, mad, frustrated… and I’ve been battling with God.
But I’ll cling to these words that my mama repeated all the time. I know that… God is good. God is good to me. and God is good at being God. I know that, but man, this disease tries to discourage that truth out of you. ✨
This Monday I came in for a scheduled maintenance stay. The first few days I always feel so crummy, and that held true, but I am grateful that this time there were no fevers, crazy high heart rates, or rashes. Today I am turning the corner and starting to feel better. 🙏
So that’s where I am right now. People often ask if they can do anything for me when I’m in the hospital, and it’s that time of year when I kick off my fundraising for the Cystic Fibrosis Foundation. My battle with Cystic Fibrosis will take a dramatic turn when I get the transplant, but you guys — we have got to find a cure for this awful disease so that those with CF right now don’t have to get to the point where they need a double lung transplant.
Help me raise funds to find a cure for all of them by making a donation at myleebosi.com.
I’m grateful for the prayers and encouragement, and for all of you who are supporting Cedric and me and my whole family. I have a lot to be grateful for. Thanks for being part of that and thank you for reading my health update novel! More short updates to come, including bragging on the amazing care and selfless love that my cute hubby shows me every day! 🤍
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