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My Great Strides Story

Rachel Lee

Fundraising for Columbia Great Strides

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Rachel Lee

Lani was born with Cystic Fibrosis. At just 2 weeks old, she was diagnosed with CF. She learned how to take her meds with applesauce at just about the same time. At 9 months old, she was hospitalized for a lung infection that kept us there for 2 weeks. She has spent countless hours in doctor's offices, hospitals, inside hooked to a machine to help her breathe; being treated for her disease. She's had way more needles and medicines given in just her short time here than most of us. But, they keep her breathing, fighting for another day with us. Now, she is 5!! She has been such a warrior and I am in awe of her strength.


When she was first diagnosed, it was presented as a terminal illness. With the help of medical research, people are living longer lives than ever. With the research comes donations from people who are eager to see a cure for this disease. We want more than anything to see Lani live a long, happy, healthy life, and so we walk for her-for every child, parent, brother, sister, grandchild, friend, who has lost their life to this disease; and to everyone affected by it. Breathe easy baby girl.



There is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.

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$465
raised of $350 goal
 

Achievements

Leader

Team Lani’s Light in the Fight

$1,541
$1,500

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.