Susan Lee
In the spring of 2015, Al painted a ceiling tile for the Children's Hospital with one of his favorite Harry Potter characters Dobby holding a hospital sock. It said, "Dobby is a free patient," but Al wasn't a free patient. He would return for lengthy hospital stays multiple times that year and the years that followed until February of 2020, when he began taking Trikafta, a new treatment available for many people with cystic fibrosis. His lung function shot up, he was able to have his g-tube and his port removed, the amount of medication he took and breathing treatments he needed decreased and he has not had an overnight hospitalization since. He finally feels free of almost all the ill effects of living with CF.
Unfortunately, Trikafta is not actually a cure for cystic fibrosis and there are still too many people with CF that will die young. I’m raising funds for the Cystic Fibrosis Foundation to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Unfortunately, Trikafta is not actually a cure for cystic fibrosis and there are still too many people with CF that will die young. I’m raising funds for the Cystic Fibrosis Foundation to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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