Today marks 30 years since my Cystic Fibrosis diagnosis. Back then, we didn’t know what the future would hold, or if I’d even make it to this moment. Being here today means everything. Below is a video of speeches my sister and I gave at the 2019 Cystic Fibrosis Luncheon in Newport Beach. At the time, I had hope, but I had no idea just how much life was about to change. Shortly after that speech, the medication I was on stopped working. I was sicker than I had ever been, and honestly… I felt like I was running out of options. I started planning my bucket list, not in a fun, adventurous way, but in a “before it’s too late” way. Then 2020 happened. And in a year that felt uncertain for everyone, something incredible happened for me. In January 2020, I started Trikafta. Six years later… It’s still working. I can breathe. I still have days where it takes everything just get out of bed. Days where my lungs feel so tired I think they will just stop. I still take handfuls of pills a day. But I can breathe! And because of that second chance at life… everything changed. ✨ I got engaged later that same year to the love of my life ✨ We got married in 2022 ✨ We moved to Oregon and adopted our dog, Tilly ✨ I started working at Travel & Cruise Desk and what I thought would just be a fun job turned into a family A family that shows up on the hard days, cheers loud on the best days, and reminds me every day how lucky I am, not just to travel, but to live. And the best part? I’ve finally started working through my bucket list… but now it’s in a fun way. From snorkeling through a shipwreck and swimming with sharks in the Bahamas, to kayaking through the rainforest and rappelling down waterfalls in Costa Rica. This is the life I once only dreamed about. 💜 A New Name, Same Mission 💜 Since I was just a few months old, my team has been known as Katie’s Kruisers. That name has carried me, and my family, through so many chapters of this journey. But life has evolved in the most beautiful ways. Here in Oregon, most people know me as Caitlin, and with my career in travel, it felt like the perfect time for a small (but meaningful) update… ✨ Welcome to Caitlin’s Cruisers ✨ Same heart. Same mission. Same fight for a cure. Just with a name that reflects who I am today, and a life I once only dreamed of living. 💜 💜 Now I want to help others keep dreaming and keep living. 💜 I’m fundraising for the Cystic Fibrosis Foundation’s Great Strides, and thanks to an incredible partnership with Delta Vacations, we’re adding something special: 🎁 Donate for a chance to win: $1,000 Delta Vacations travel credit A swag bag for your next adventure 👉 For every $20 you donate, you’ll receive one entry to win. 💜 Great Strides Walk Details: Date: May 30th Check-In: 4:00 PM Start Walk: 5:00 PM Location: University of Portland Because everyone deserves to experience their bucket list… ✨ not in a “before it’s too late” way ✨ but in a joyful, adventurous, live-your-life kind of


My Great Strides Story
Caitlin Weis
Fundraising for Columbia/Willamette Great Strides 2026
Caitlin Weis
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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22
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