My Great Strides Story
Kelsey Scott
Fundraising for Columbia/Willamette Great Strides 2026
Kelsey Scott
“I don’t want cystic fibrosis anymore- I want it to go away” “Will I always need to take medicine?” “Why isn’t there a medicine to make me all better?
Xander is 6, and he’s asking for a cure. He’s asked me why scientists haven’t done it yet and he wants them to work faster.
we have been blessed with pancreatic enzymes (every time he eats), Trikafta twice a day and a shakey vest and nebulizer medications that prove the scientist have been working, and making great progress. He has a bowel protocol and a gtube to get enough calories. All of these things are steps that we wish future children won’t have to manage.
Xander is advancing scientific findings: he’s about to join his 3rd medical study and he shares his medical information with the cf registry. He’s doing his part to end cystic fibrosis. You can help too- donations and sharing this fundraiser help scientists continue their work to find a cure. Xander just wants to run like Sonic, and we need advances to keep him from advancing in a progressive, incurable disease.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Xander is 6, and he’s asking for a cure. He’s asked me why scientists haven’t done it yet and he wants them to work faster.
we have been blessed with pancreatic enzymes (every time he eats), Trikafta twice a day and a shakey vest and nebulizer medications that prove the scientist have been working, and making great progress. He has a bowel protocol and a gtube to get enough calories. All of these things are steps that we wish future children won’t have to manage.
Xander is advancing scientific findings: he’s about to join his 3rd medical study and he shares his medical information with the cf registry. He’s doing his part to end cystic fibrosis. You can help too- donations and sharing this fundraiser help scientists continue their work to find a cure. Xander just wants to run like Sonic, and we need advances to keep him from advancing in a progressive, incurable disease.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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