Gabbys Story
Shelby Dimel
Shelby Dimel
When Gabby was born the new born screening told us she had CF. Something we suspected during my pregnancy. She had an echogenic bowel (enlarged) and was born with meconium ilius and a jejunal atresia. Her intestines were not fully formed and not connected.
At 2 days old she had her first surgery where they removed a small portion of her bowel and gave her an ostomy bag to allow her intestines to heal. She had the ostomy bag for about a month and a half and then she prolapsed her stoma (pushed it out from where it should have been). So they did her ostomy reversal sooner than planned. Then two days after that she had her third and final surgery to repair a small hole they found in her bowels. We spent a total of 64 days in the NICU.
Since being in the NICU we have been inpatient twice for bowel blockages. But luckily we are relatively healthy and growing strong!
We recently started Trikafta- a medicine that will hopefully help keep us healthy and keep us from having lung damage in the future.
There is currently no cure for cystic fibrosis. CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to our fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
At 2 days old she had her first surgery where they removed a small portion of her bowel and gave her an ostomy bag to allow her intestines to heal. She had the ostomy bag for about a month and a half and then she prolapsed her stoma (pushed it out from where it should have been). So they did her ostomy reversal sooner than planned. Then two days after that she had her third and final surgery to repair a small hole they found in her bowels. We spent a total of 64 days in the NICU.
Since being in the NICU we have been inpatient twice for bowel blockages. But luckily we are relatively healthy and growing strong!
We recently started Trikafta- a medicine that will hopefully help keep us healthy and keep us from having lung damage in the future.
There is currently no cure for cystic fibrosis. CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to our fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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