From the outside you can’t see what it means to live with cystic fibrosis.

Lilly works hard in school, sports, and just to breathe.  Every school day she wakes up at 5:45 a.m. to inhale nebulized medicine and has a machine shake mucus from her lungs to slow down the progression of cystic fibrosis.  The intensity of this disease’s impact on her lungs, liver, pancreas, and overall body grows every year. 

Last year, Lilly took over 10,000 pills, spent over 400 hours hooked up to machines to help her lungs, had surgery, IV Medicine every three months, participates in clinical trials, and has countless medical procedures.

Through all of this she pushes herself to have all A’s in school, rides horses, plays tennis, runs track, and does volunteer work.

The Cystic Fibrosis Foundation is discovering treatments for her rare mutations that can change Lilly’s future for the better.  Would you please join us and help us rise against this disease?

Thank you for showing up for us. The power of community has been such a stabilizing force in our lives.

Kathy and Lilly