Walk with us to cure Cystic Fibrosis
Riley’s ROAR!
Riley’s ROAR!
✨APRIL 27, 2025✨
Riley’s journey with CF has been anything but ordinary. Over the years her diagnosis has changed from Cystic Fibrosis to CRMS to CFTR-Related Disorder. Despite her questionable genetics and intermediate sweat chloride tests, she was never asymptomatic. After hundreds of appointments, phone calls, blood draws, x-rays, PFTs, medication changes, etc., her mutations were approved to be treated by Kalydeco.
Words cannot even begin to express how utterly life changing Kalydeco has been…
The toddler who spent hours a day laying on the couch in pain has transformed into a bubbly, outgoing girl. The toddler who couldn’t walk for more than 20 minutes without needing to rest has transformed into a strong dancer and gymnast.
The CF Foundation has made incredible progress towards finding a cure for this disease. However, there is still so much work to do. Many people living with CF cannot currently benefit from drugs like Kalydeco and Trikafta. Their fight is our fight. Until every person living with CF benefits from the medications available…until CF stands for cure found…we stride, we donate, we advocate.
Please join us for Great Strides 2025! Help us show Riley how loved and supported she is, and may she never walk this journey alone.
Riley’s journey with CF has been anything but ordinary. Over the years her diagnosis has changed from Cystic Fibrosis to CRMS to CFTR-Related Disorder. Despite her questionable genetics and intermediate sweat chloride tests, she was never asymptomatic. After hundreds of appointments, phone calls, blood draws, x-rays, PFTs, medication changes, etc., her mutations were approved to be treated by Kalydeco.
Words cannot even begin to express how utterly life changing Kalydeco has been…
The toddler who spent hours a day laying on the couch in pain has transformed into a bubbly, outgoing girl. The toddler who couldn’t walk for more than 20 minutes without needing to rest has transformed into a strong dancer and gymnast.
The CF Foundation has made incredible progress towards finding a cure for this disease. However, there is still so much work to do. Many people living with CF cannot currently benefit from drugs like Kalydeco and Trikafta. Their fight is our fight. Until every person living with CF benefits from the medications available…until CF stands for cure found…we stride, we donate, we advocate.
Please join us for Great Strides 2025! Help us show Riley how loved and supported she is, and may she never walk this journey alone.
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