Lilly was born 18 years ago with cystic fibrosis. At that time her life expectancy was 27 years. Her diagnosis took months and she almost died.

Thanks to years of dedication by parents and the Cystic Fibrosis Foundation there were treatments to slow her lungs from clogging with mucus and to aid her pancreas in absorbing  nutrients. As she has grown there were more health challenges such as osteoporosis and liver disease which are common among CF patients.

This year brought significant improvements with the release of a new drug to help clear her lungs.

As she finishes her Senior year of high school and looks forward to entering Ohio University with a small scholarship in environmental engineering, we can hardly believe the progress.

Unfortunately CF is more than a lung disease and cutting edge research continues to address liver disease and infections and other problems of living with CF. There are also still others waiting for a drug to help their lungs.

You can learn more about her life and many medical challenges by  clicking on the short video made by her dedicated mother at the end of this message.

Every dollar you donate to Lilly’s Sunshine Team advances the research and science needed to drive our shared dream forward – a cure for everyone with CF.

Will you help us end cystic fibrosis?

All donations are tax deductible and all dollars are greatly appreciated. We also  accept  checks made out to CFF. With much gratitude as we face these challenges together. 

Ruth and  Hank Lapp