My Great Strides Story
Johanna Perez
Fundraising for Washington, DC Great Strides
Johanna Perez
My daughter Penelope Perez, that's who I stride for. I'm fundraising for Team Penny and I hope you can join me. Penelope is 2 years old and has a very rare mutation, currently waiting to see if we are eligible for a modulator. A modulator would make the disease a lot easier to manage for Penelope, but with or without one we will continue to fight and advocate for a cure for all.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
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