20 YEARS Later, A Froggy Keeps On Hoppin'!
Elise Free
Fundraising for Des Moines Great Strides 2026
Elise Free
For privacy reasons, we are no longer showing photos of the real Froggy.
Twenty years ago 20!!!!! Froggy was diagnosed with cystic fibrosis (CF).
At the time of her diagnosis, the life-expectancy was a mere 38 years, but many children did not live to adulthood. There are no words to describe how it felt to hear that my child could die, or more accurately that she would die from this disease. The question was always, "when?" And of course for us, the answer was always, "Not until she's at least 100!"
Cystic fibrosis or CF is a genetic and life-shortening (used to be fatal) disease that damages the lungs, pancreas and other vital organs. The Frog takes over 40 pills a day and sees more specialists every 3 months than most people will in a lifetime.
Because of YOU. Let me repeat that. Because of YOU donating to the Cystic Fibrosis Foundation over the years, the treatments for CF have evolved exponentially!
A CFTR modulator medication called Trikafta is a major game-changer for the Frog. But, damn, there's always a but. Not everyone with CF can benefit from this drug and for some, the side-effects are not worth the benefits.
We NEED A CURE!!! This medication (as wonderful as it is) is not a cure for Froggy and not even an option for many.
When I think about where we were 20 years ago when Froggy was diagnosed and where we are now, I know that the next 20 years bring us even closer to a cure or...crossing fingers...knocking on wood...give us the treatment or pill that is a cure for EVERYONE with cystic fibrosis. We will not stop until our entire community receives the cure they deserve!!!
Please help us make CF stand for Cure Found. Thank you.
Twenty years ago 20!!!!! Froggy was diagnosed with cystic fibrosis (CF).
At the time of her diagnosis, the life-expectancy was a mere 38 years, but many children did not live to adulthood. There are no words to describe how it felt to hear that my child could die, or more accurately that she would die from this disease. The question was always, "when?" And of course for us, the answer was always, "Not until she's at least 100!"
Cystic fibrosis or CF is a genetic and life-shortening (used to be fatal) disease that damages the lungs, pancreas and other vital organs. The Frog takes over 40 pills a day and sees more specialists every 3 months than most people will in a lifetime.
Because of YOU. Let me repeat that. Because of YOU donating to the Cystic Fibrosis Foundation over the years, the treatments for CF have evolved exponentially!
A CFTR modulator medication called Trikafta is a major game-changer for the Frog. But, damn, there's always a but. Not everyone with CF can benefit from this drug and for some, the side-effects are not worth the benefits.
We NEED A CURE!!! This medication (as wonderful as it is) is not a cure for Froggy and not even an option for many.
When I think about where we were 20 years ago when Froggy was diagnosed and where we are now, I know that the next 20 years bring us even closer to a cure or...crossing fingers...knocking on wood...give us the treatment or pill that is a cure for EVERYONE with cystic fibrosis. We will not stop until our entire community receives the cure they deserve!!!
Please help us make CF stand for Cure Found. Thank you.
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