My Great Strides Story
Aarika Davis
Aarika Davis
I am the mother of a tiny warrior. My son Elijah was diagnosed with Cystic Fibrosis at just 19 days old. As first time parents with such little knowledge on the subject and no idea we were carriers, my husband and I were shocked and terrified at the diagnosis. We were overwhelmed and scared for our newborn. We didn’t know what this would mean for our future. Elijah has two mutations, one being more common and one being more rare. There is no cure for his disease. There is a 25% chance any child we have will also have CF. There is a 50% chance any child we have will be carrier of one of the genes. There is also a 25% chance any child we have will be completely healthy. Although our sweet boy seems healthy from the outside this disease attacks the inside of him every day. Sticky mucus attaches to his lungs and other organs. He is also pancreatic insufficient. He has to wear a vest and nebulize albuterol twice day for 20min. One treatment included hypersol. When he’s sick we do this 4 times a day. He has to take enzymes for every meal. He’s had to do this since he was under a month old. Our daily routine is very different than most. We are so thankful for the Cystic Fibrosis Foundation and everyone who works hard to find a cure. We are so thankful and appreciative to every person who has donated to this cause. Our hope and prayers are for a cure so our son can live a long normal life.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
JAN
13
13
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