I can’t even believe it’s already walk time again! 2025 and 2026 have been pretty bad ass to be honest. I’ve done a lot of work and switched up medications to get my diabetes under control (FINALLY). Actually, I think that’s helped my overall health snapshot more than I could ever even fully understand. Last year I switched from one of the CF modulator medications to the newest one and that has significantly helped/improved my mental health and brain capacity. (As amazing as the modulators are, unfortunately there are huge psych side effects, and it’s definitely taken time to adjust). Since last years walk, I’ve only been hospitalized three times! If I’m being completely honest though, it feels crazy even writing that. I guess that’s life with a chronic illness. I’m excited and bragging about THREE hospital stays. Some people never even have ONE. 😂 Although I have been beyond blessed to be on the cusp of cystic fibrosis research since I was a young girl, I worry when we have such huge strides that people will give up on us. Although I’ve been “healthier” the last year, the maintenance to keep myself that way is a true full-time job. I work my butt off to take care of myself yet on top of all the work I put into myself and my health, there are still days that it’s near impossible to function as a normal 37-year-old adult. I appreciate each of you staying on this journey with me. I know causes for children seem to hit a little harder than an adult who is living a beautiful life… but like I’ve said since I was 14 years old, I won’t stop until CF stands for CURE FOUND! I could not be more appreciative of YOU and your support in my journey (whether that’s financial or not) - I am truly so thankful. 
 
Please consider donating to help us reach our goals! We should have a cure by now - it feels like we are SO DANG CLOSE. 

Thank you again for your continued support.