Edit in profile section

My Great Strides Story

Kristen Robinson

Fundraising for Dallas Great Strides 2026

Donate

Kristen Robinson

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

EMMIE’S CREW

Emmie was diagnosed with CF in 2024. She has two of the rarest mutations in the world and selflessly participated in a medical research trial in 2025 to help others living with this disease. The trial involved biopsies that later showed a response to a modulator medication called Trikafta. After months of battling insurance, she won her case and now has access to life changing medication. Her hope for the future is that this data will open access to more rare CF patients obtaining access to modulator medications, but ultimately that a cure will be found for ALL CF patients.

Comments

$0
raised of $350 goal
 

Achievements

Leader

Team Emmie’s Crew

$0
$1,000

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.