Walk with our team to Cure Cystic Fibrosis
Delguzzo's Dynamic Duo
Delguzzo's Dynamic Duo
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Hello everyone! My name is Ashley and I'm Aria and Roman's mom. Aria was diagnosed with her newborn screening for cf. Roman had the same one gene pop up on his newborn screening but his sodium tests were pretty normal. The genetic counselor told us that he probably didn't have it. Unfortunately after 2 and 1/2 months of waiting for results I decided to do my own testing and we did find out that he was positive for both genes. Since finding out, they are both pancreas sufficient which in turn makes keeping them healthy a whole lot easier. Cf is a spectrum and also a progressive disease. We will always be striding for a cure for cystic fibrosis.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Hello everyone! My name is Ashley and I'm Aria and Roman's mom. Aria was diagnosed with her newborn screening for cf. Roman had the same one gene pop up on his newborn screening but his sodium tests were pretty normal. The genetic counselor told us that he probably didn't have it. Unfortunately after 2 and 1/2 months of waiting for results I decided to do my own testing and we did find out that he was positive for both genes. Since finding out, they are both pancreas sufficient which in turn makes keeping them healthy a whole lot easier. Cf is a spectrum and also a progressive disease. We will always be striding for a cure for cystic fibrosis.
JAN
29
29
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