Strolling for Sarah
Dear Friends and Family,
Thank you for taking the time to visit my Great Strides page. This will be our sixteenth year walking for Great Strides and our fourteenth year as a national team. Our local Great Strides will be in person this year on May 3rd at Meadowbrook Park in Urbana.
Sarah is close to the end of her sophomore year at the University Laboratory High School. She is having a blast in the Drama Club and the Dungeons and Dragons club! Outside of school she earned her black belt in Tae Kwon Do this spring! We are very proud of her for this achievement.
Sarah’s health has been strong and steady this past year, now that she is taking Trikafta. Trikafta is the new combination of three drugs created by Vertex Pharmaceuticals, with financial support from the Cystic Fibrosis Foundation. This therapy corrects the nonfunctional protein in many CF patients. Her growth has been so good that she is now taller than I am! Trikafta is not a cure, but it is a game changer, and it is what we have been working so hard toward.
As amazing as Trikafta is, there are still 10% of CF patients who cannot benefit from it, so the search continues for a therapy that will improve the health all CF kids. You can see the pipeline of therapies in development here: https://apps.cff.org/trials/pipeline/
Please help Sarah by joining us on team Strolling for Sarah. Your company on the walk would mean so much. If you can't be there, please consider supporting a walker on our team. We are helping add tomorrows for those living with cystic fibrosis!
Thank you,
Rachel
Thank you for taking the time to visit my Great Strides page. This will be our sixteenth year walking for Great Strides and our fourteenth year as a national team. Our local Great Strides will be in person this year on May 3rd at Meadowbrook Park in Urbana.
Sarah is close to the end of her sophomore year at the University Laboratory High School. She is having a blast in the Drama Club and the Dungeons and Dragons club! Outside of school she earned her black belt in Tae Kwon Do this spring! We are very proud of her for this achievement.
Sarah’s health has been strong and steady this past year, now that she is taking Trikafta. Trikafta is the new combination of three drugs created by Vertex Pharmaceuticals, with financial support from the Cystic Fibrosis Foundation. This therapy corrects the nonfunctional protein in many CF patients. Her growth has been so good that she is now taller than I am! Trikafta is not a cure, but it is a game changer, and it is what we have been working so hard toward.
As amazing as Trikafta is, there are still 10% of CF patients who cannot benefit from it, so the search continues for a therapy that will improve the health all CF kids. You can see the pipeline of therapies in development here: https://apps.cff.org/trials/pipeline/
Please help Sarah by joining us on team Strolling for Sarah. Your company on the walk would mean so much. If you can't be there, please consider supporting a walker on our team. We are helping add tomorrows for those living with cystic fibrosis!
Thank you,
Rachel
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