Walk with our team to Cure Cystic Fibrosis
JJ's Journey
Fundraising for Eastern Iowa Great Strides 2026
JJ's Journey
JJ will turn 6 this May! It has been a long road since his rocky first weeks of life. After birth, JJ made it to the NICU at our local hospital. From there, they noticed he may have a bowel blockage. Weather prevented a helicopter ride, but an emergency ambulance to the University of Iowa Children's hospital, and admission to Bay 1. An emergency bowel surgery the next morning removed about 1/3 of his small intestine. Screening results confirmed Cystic Fibrosis, the blockage was a complication of his disease. We've lost count of the hospitalizations and ambulance rides since then, but on the outside, JJ is a typical 5 year old. He loves all things Hawks! He also enjoys soccer, wrestling, fishing, baseball, golf, and riding his bike! His scars are a reminder of the journey so far. He has a strict regimen of medication, treatments, and maintenance for his lungs, liver, and digestive needs. We are thankful for the medical advancements that keep him healthy, and the close eye his care team keeps on him. We know that the job is not done. We need your help fundraising for a cure.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
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