Margaret Nawrockyj
Canaan is now an incredibly energetic ten-year-old. He has been continuing in jiu jitsu, has begun piano lessons, and he has started a homeschool co-op group and has been thriving on all fronts!
The year 2025 was the first full year that Canaan has not required even one antibiotic as well as the first year he has had no anesthesia. His CF doctor and I are simply amazed at how well he is doing and how much Trikafta (the cell-modulator Canaan is blessed to qualify for and benefit from) has improved his overall health. It has been night and day since he started this drug on May 3, 2022. We know God has blessed us with this and we pray that his liver continues to tolerate this medicine that some have been less fortunate as to be able to qualify to take (based on their individual genetic mutation) or have not tolerated due to liver inflammation.
Canaan will have his feeding tube replaced on April 27th. We walk on May 9th to celebrate how far Canaan has come, the progress made within the CF community and the hope we have for the future of ALL those who live with Cystic Fibrosis!
If you can come out and walk with us, I would love to have Canaan surprised by how many people who love him and show up to walk with him! If you can help by praying, we ask that you would pray for Canaan's continued good health and specifically for his liver to not get inflamed. If you can help financially, I can personally attest to the incredible progress the CF Foundation has made - strides that I have rarely seen made anywhere else in medicine. The goal is always to make "CF" no longer stand for Cystic Fibrosis; instead, we pray it will stand for Cure Found.
The year 2025 was the first full year that Canaan has not required even one antibiotic as well as the first year he has had no anesthesia. His CF doctor and I are simply amazed at how well he is doing and how much Trikafta (the cell-modulator Canaan is blessed to qualify for and benefit from) has improved his overall health. It has been night and day since he started this drug on May 3, 2022. We know God has blessed us with this and we pray that his liver continues to tolerate this medicine that some have been less fortunate as to be able to qualify to take (based on their individual genetic mutation) or have not tolerated due to liver inflammation.
Canaan will have his feeding tube replaced on April 27th. We walk on May 9th to celebrate how far Canaan has come, the progress made within the CF community and the hope we have for the future of ALL those who live with Cystic Fibrosis!
If you can come out and walk with us, I would love to have Canaan surprised by how many people who love him and show up to walk with him! If you can help by praying, we ask that you would pray for Canaan's continued good health and specifically for his liver to not get inflamed. If you can help financially, I can personally attest to the incredible progress the CF Foundation has made - strides that I have rarely seen made anywhere else in medicine. The goal is always to make "CF" no longer stand for Cystic Fibrosis; instead, we pray it will stand for Cure Found.
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