My Great Strides Story
Connie Irby
Fundraising for Fredericksburg Great Strides
Connie Irby
I remember clearly the day, just days after Colton was born, that my son called us to ask to meet him because he had something to tell us. I remember clearly the anguish and tears as he told us that Colton had been preliminarily diagnosed with Cystic Fibrosis. I also remember going with them the day that they had their first appointment at Children's hospital to get a positive diagnosis and be given a ton of information about what was to come. I was there as the note taker so Ben and Courtney could focus on what was being said.
Colton turns 8 years old this year and he is amazing. He is so much more than his diagnosis, his treatments, his meds, his therapies, his hospital stays, his doctors visits. He is a great kid who loves to play roller hockey, loves bugs, loves animals (stuffed and real), loves to play outside. He loves his family and has great friends. He does his treatments and takes his meds without complaint (most days). He has the GREATEST laugh!
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
Colton turns 8 years old this year and he is amazing. He is so much more than his diagnosis, his treatments, his meds, his therapies, his hospital stays, his doctors visits. He is a great kid who loves to play roller hockey, loves bugs, loves animals (stuffed and real), loves to play outside. He loves his family and has great friends. He does his treatments and takes his meds without complaint (most days). He has the GREATEST laugh!
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
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