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My Why to Great Strides

Elaine Ruh
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Elaine Ruh

**** Team Maddox - 10th Year ****

Maddox was diagnosed with Cystic Fibrosis when he was 5 days old. We were introduced to his CF Team was he was 9 days old and started his enzymes at 11 days old. When he was 6 years old, he started Trikafta. We tackle every day with renewed sense of positive energy when we see him smile, master his karate forms, and run the routes in flag football. We are thankful that we were able to work his CF team right away to learn about it and to give him the tools he needs to grow up big and strong.

Our goal has been and will always be to have him be as 'normal' as a little dude can be; scrap his knees, hang with his friends, play video games and enjoy being a kid. There have been so many leaps and bounds to help find a cure for CF that we are so optimistic that he will have as close to a normal life, medically, as the rest of us.

That is why we are coming together with others to rally together to fund the research that is needed to help Maddox in his every day struggles and provide the support for everyone that CF has touched in their lives.

There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.

CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.  

Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.

Will you help us end cystic fibrosis?

By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.

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$500
raised of $5,000 goal
 

Achievements

Leader

Team Maddox

$500
$10,000

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The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.