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Team Hope for Hayes
Hope For Hayes
Hope for Hayes
Hi everyone!
Welcome to Team Hope for Hayes!
Hayes, who just turned 2 in January, was diagnosed with Cystic Fibrosis after being unexpectedly born with a Bowel Blockage known as a Meconium Ileus. Hayes was born in Green Bay, but got transported down to Childrens Hospital in Milwaukee for surgery at five days old. About a week after Hayes' surgery, his parents, Jordan and Madison, received his official CF diagnosis from his newborn screen, showing that he was positive for the gene mutation Double Delta f508 (DDf508).
In Hayes two years of life, he has been hospitalized three times for bowel blockages. He also has fought through pseudomonas (and currently kicked its butt!), and goes through daily treatments and medications to minimize the effects of his illness.
Even though Hayes has to go through so much to manage his disease, he does it every day with a smile on his face. He is so strong and has such a joyful zest for life! He has not let CF stop him from living life to the fullest.
Hayes is your typical two year old boy who loves tractors, trucks, diggers, books, his family, and his two golden retrievers, Nova and Nellie. This year, Hayes will take on another new and exciting role - being a big brother to his new baby sibling that is due in May!
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
Welcome to Team Hope for Hayes!
Hayes, who just turned 2 in January, was diagnosed with Cystic Fibrosis after being unexpectedly born with a Bowel Blockage known as a Meconium Ileus. Hayes was born in Green Bay, but got transported down to Childrens Hospital in Milwaukee for surgery at five days old. About a week after Hayes' surgery, his parents, Jordan and Madison, received his official CF diagnosis from his newborn screen, showing that he was positive for the gene mutation Double Delta f508 (DDf508).
In Hayes two years of life, he has been hospitalized three times for bowel blockages. He also has fought through pseudomonas (and currently kicked its butt!), and goes through daily treatments and medications to minimize the effects of his illness.
Even though Hayes has to go through so much to manage his disease, he does it every day with a smile on his face. He is so strong and has such a joyful zest for life! He has not let CF stop him from living life to the fullest.
Hayes is your typical two year old boy who loves tractors, trucks, diggers, books, his family, and his two golden retrievers, Nova and Nellie. This year, Hayes will take on another new and exciting role - being a big brother to his new baby sibling that is due in May!
We invite you to take part in Great Strides by joining our team. We promise, you belong here! This event promises to be a fun-filled day where you can help advance the care and research needed to cure cystic fibrosis. By walking with us, you’ll enjoy not only the natural camaraderie (yes, lots of laughter!), but the important impact we are making together.
While the CF Foundation has made incredible progress, not everyone with CF can benefit from existing therapies and we still need a cure. This will require time, funding, and persistence – but with you on our team – we are ready to go the distance.
Our team is committed to providing every person with CF the opportunity to live a long, healthy life. Will you join us?
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