My Great Strides Story
Kerry Jeffrey
Fundraising for Grand Rapids Great Strides
Kerry Jeffrey
There is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Help our team!
Rowan has been diagnosed with CRMS, or CFTR-Related Metabolic Syndrome. This is a diagnosis given to individuals who test positive for cystic fibrosis (CF) during newborn screening but do not meet the criteria for a full CF diagnosis.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Help our team!
Rowan has been diagnosed with CRMS, or CFTR-Related Metabolic Syndrome. This is a diagnosis given to individuals who test positive for cystic fibrosis (CF) during newborn screening but do not meet the criteria for a full CF diagnosis.
While he lives in this gray area, he will continue to be monitored throughout his life. Research has shown there is the possibility for his diagnosis to change to CF.
As we research and learn more, we want to help all those suffering from this disease and help to find a cure.
As we research and learn more, we want to help all those suffering from this disease and help to find a cure.
Donate to Rowan's Roundup and help us make a difference!
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
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