I’m Brandi, Sutter’s (Sutton’s) mama. Our girls journey started six days after was born, when her newborn screening came back abnormal for cystic fibrosis. With that being said we had to have further testing done which then confirmed and gave her a formal diagnosis of cystic fibrosis on 10/31/2023. This raised so many concerns for our baby with us not understanding or even knowing what cystic fibrosis was or what it entailed. All we had was Google and that just raised our fears even more. This was until CHOA ( Children’s Hospital of Atlanta ) her team of amazing doctors and others eased our minds, and they were there for any concern questions, anything truly we had needed. They have been a savior when it comes to our little family. Sutter is 18 months now just a little under a week short of 19th months. She is thriving everyday despite fighting this disease, you would never know that our girl has cystic fibrosis just by looking at her. You see nothing but happiness, everything good shows through her. She is the light in our lives along beside her big sissy. She goes through life like nothing in this world could ever stop her this is my favorite thing about her. She shows every day that she won’t let this disease slow her down. Every breath my girl takes is a blessing in itself. Each day she wakes up still as healthy as she is now is a blessing. With all this being said there is still no cure for cystic fibrosis, if you can find it in your heart to donate towards the cure of cystic fibrosis for not only our girl, but for everyone that fights every day with this disease. Thank you truly everyone.
Brandi Noe
There is currently no cure for cystic fibrosis and too many people with CF die young. I’m walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward – a cure for everyone with CF.
MAY
10
10
Comments