We will soon be walking in Great Strides Atlanta 2026! Please help me meet my fundraising goal by making a donation of any amount.
Our 13 year old daughter Betsy was diagnosed with CF in utero in 2012. Betsy is considered to have a relatively "mild" form of CF. However, "mild" for Betsy means 7 surgeries, two 14 day hospital admissions for IV antibiotics, an hour of breathing treatments and percussive therapy every day, and a growing list of daily medications that she must be prepared to take for the rest of her life. Betsy is a fighter, to say the least. When she was in the hospital and prescribed an expensive, but truly beneficial CF specific medication, the CF Foundation was there for my family, offering guidance and direction, but most of all hope.
It truly is an amazing time to help the CF Foundation, since we are so close to a cure. In recent years, new medications have been released for a percentage of the CF population, to help slow the progression of CF, and even eliminate symptoms for many, thus extending the lifespan of thousands of people. But we cannot stop there. A cure has not yet been found and people continue to lose their lives to this disease.
There is currently no cure for cystic fibrosis and too many people with CF die young. I'm walking to help change that reality.
CF is a genetic, life-shortening disease that devastates the lungs, pancreas, and other vital organs. CF makes it difficult to breathe and fight life-threatening infections, often leading to extensive lung damage and respiratory failure.
Every person born with cystic fibrosis is on a unique journey and experiences this challenging disease differently. While progress has been made, a long road lies ahead for far too many people fighting this terrible disease. We need a cure so that everyone with CF has a better chance to live a long, healthy life.
Will you help us end cystic fibrosis?
By donating to my fundraising goal, you have the power to advance the research and science needed to drive our shared dream forward - a cure for everyone with CF.
The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.
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