
Elyse Jupiter
Anyone that meets Tobias knows that he's special. If you have ever met him in person, I bet you have a funny story to tell about it.
But did you know that he's 1 in 8.25 billion?
An actual unicorn?
That's right - Tobias is the Only person in the world with his CF mutation combination.
That means he is still waiting for his miracle. He is part of only 3.3% of CF patients in the world that do not have a genetic therapy available to them. That's 3,300 CF patients out of the 100,000 estimated people living with CF worldwide today.
There are many therapies in the research pipeline that could make a difference for him - but he needs our help!
Due to the rare nature of this disease, most of the research funding still comes from private fundraising efforts like the Great Strides walk.
Please join us in raising funds, or come for the walk - we would love to see you!
But did you know that he's 1 in 8.25 billion?
An actual unicorn?
That's right - Tobias is the Only person in the world with his CF mutation combination.
That means he is still waiting for his miracle. He is part of only 3.3% of CF patients in the world that do not have a genetic therapy available to them. That's 3,300 CF patients out of the 100,000 estimated people living with CF worldwide today.
There are many therapies in the research pipeline that could make a difference for him - but he needs our help!
Due to the rare nature of this disease, most of the research funding still comes from private fundraising efforts like the Great Strides walk.
Please join us in raising funds, or come for the walk - we would love to see you!
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