For our family, cystic fibrosis has never just been a cause. It’s been part of our everyday life for a very long time.

Over the years, we’ve witnessed extraordinary progress in CF care and research. Watching the impact of Trikafta on our children’s health has been nothing short of life-changing, and I will never stop being grateful for the scientists, researchers, donors, and advocates who helped make that possible.

But while Trikafta has changed lives, it is not a cure.

There are still people living with CF who cannot benefit from it. There are still daily treatments, complications, hospitalizations, and uncertainty. And there is still no cure.

Many years ago, Jon made a promise to our children:
“We will not stop until there is an actual cure for cystic fibrosis.”

That promise didn’t end when he passed away.

So this month, during Cystic Fibrosis Awareness Month, I’m continuing the fight in honor of that promise—and for every family still living this journey every single day.

If you’d like to support our fundraising efforts, share this page, donate, or simply help spread awareness, it truly means more than you know.

Thank you for being here 🤍