Edit in profile section

My Great Strides Story

Hugh Breslin
Donate

Hugh Breslin

Alice, I and the Breslin family are, once again, back to work at taking on the fight to find a cure for Cystic Fibrosis!

It's our 31st year! We are very excited that CF Family teams will be gathering to work together in our efforts to raise funds for vital CF research. CF is relentless, and so are we! Caitlin's Crew is committed to finding the cure!
 

Our daughter, Caitlin, as you know, has CF and is now living in Perry Hall, MD and is busy with her life as a recent mother of her 2nd miracle baby, two year old Lucy, and her four year old son Liam.  I thought I would share with you a message she is sharing this year in her, and our, efforts to raise funds to fight CF. This is why we keep fighting...
 

'Thank you to everyone for your continued support year after year. My family has been fundraising for CF for as long as I can remember and the results of the research that has been done in my lifetime is absolutely INCREDIBLE. The fundraising dollars given by you have truly kept me alive. Not only am I alive but because of your fundraising dollars I am LIVING a full life. I was able to go away to college, get a full time job, get married. All these things were just dreams that I potentially thought wouldn't have become a reality but because of your care they have come true! 
 
In December 2019, I started taking a life changing therapeutic called "Trikafta". Trikafta is an incredible drug that in clinical trials had proven to improve lung function by 10% and higher! In my experience so far with Trikafta it has brought me so many blessings. I now have a dry cough for the first time in YEARS, I no longer spit up mucus on a daily basis and because of that my lung function has improved 40% and has been consistent for 4 years now! I feel like I can take a deep breathe for the first time in my life. Trikafta has given me a chance at a whole new life that I never thought possible. Best of all Trikafta made me a mom to TWO beautiful healthy babies, Liam (age 4) and Lucy (age 2). So, for that I thank you endlessly because your donations and support made me a mom!!! 
 
The fight against CF has come a long way since I was born but it is not over because this is not a cure and unfortunately Trikafta doesn’t work for 10% of CF mutations so we need to continue to fundraise for others who cannot take Trikafta. We can’t stop until CF stands for Cure Found!"


Our dream is that one day Caitlin, and all others with this disease, will no longer have to spend any time doing the treatments that give them breath, and extra days. Drugs, like Trikafta, and therapeutic advances that have been achieved since her birth have been miraculous and are the direct result of the generosity of our friends and family who have joined the Crew in the past. However, 10% of those with CF have NO therapeutic drugs to help them live healthier lives. That is why we want to find the cure!! We want CF to stand for CURE FOUND! We will keep fighting until it's done!


This year, Caitlin and the Breslin Family are walking in our local Great Strides walk on May 3rd in Hagerstown and we, once again, seek your help to meet our fundraising goal. Also, we are asking our National team friends and family who traditionally walk in sites in Annapolis, MD, Philadelphia, PA, New Orleans, LA, Jacksonville, FL and Durham, NC to join our efforts by participating in their Chapter's events. Last year, we raised over $75,000+ in this overall team effort so we have a real challenge to surpass this amount!!!

Comments

$4,080
raised of $15,000 goal
 

Donate

Achievements

Leader

Team Caitlin's Crew

$4,480
$17,500

Recent Donations

Attendance Policy

The CF Foundation is committed to providing a safe, inclusive, and healthy experience for individuals attending Foundation Events. Individuals attending CF Foundation events must abide by the Foundation's Attendance Policy and accompanying guidelines, which include guidance for event attendee's living with cystic fibrosis.

View Attendance Policy